Few glioblastoma patients are able to speak from within the disease, and few of their caregivers have the resources to do so. What is the cost of our not hearing those most intimate with the terrain? Leila Segal was caregiver to her husband, New York Times foreign correspondent Rod Nordland, through six years of glioblastoma. Both wrote continually as they survived and cared for one another. As long as Rod could hold a pen, he wrote – and when he no longer could, he wrote with a finger in the air. Sharing from this testimony and her intimate photography, Leila considers how we preserve autonomy, dignity and love even as body and brain are taken – and how we build communities that recognize worth in those whose brains are different, and in those who care for them.

A reception in the President's Suite will be held from 4-6, as well.